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  1. Project Scope Statements/Proposals
  2. PSS-2240

Personalized Health Navigation

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      Although HL7 and other standards groups have advanced "patient" focused standards (e.g., personal health records), as well as specifications from mobile health and devices working groups, the primary focus is on informatics within healthcare application contexts and there is little that actually enables individuals (not necessarily patients) to understand and effectively pursue their own health and wellness objectives.  This project focuses on this person-controlled health navigation aspect, while fully leveraging and integrating with the existing work throughout HL7.  

      Based on established academic research (e.g., from the University of California, Irvine - Institute for Future Health), a conceptual set of standards is being created within the international standards arena, namely ISO/TC215 9472 PHN family.  This does not provide for a robust implementation community and especially one that leverages FHIR-based technologies to help realize real-world implementations.

      This project addresses this need for the creation of a FHIR-based implementation community, and does so as an extension to the established patient and healthcare focused work within HL7.

      See also the APPROVED PSS-2197 PHN Project Proposal.

      Show
      Although HL7 and other standards groups have advanced "patient" focused standards (e.g., personal health records), as well as specifications from mobile health and devices working groups, the primary focus is on informatics within healthcare application contexts and there is little that actually enables individuals (not necessarily patients) to understand and effectively pursue their own health and wellness objectives.  This project focuses on this person-controlled health navigation aspect, while fully leveraging and integrating with the existing work throughout HL7.   Based on established academic research (e.g., from the University of California, Irvine - Institute for Future Health), a conceptual set of standards is being created within the international standards arena, namely ISO/TC215 9472 PHN family.  This does not provide for a robust implementation community and especially one that leverages FHIR-based technologies to help realize real-world implementations. This project addresses this need for the creation of a FHIR-based implementation community, and does so as an extension to the established patient and healthcare focused work within HL7. See also the APPROVED PSS-2197 PHN Project Proposal .
    • Patient Empowerment
    • Devices
      Mobile Health
      Service Oriented Architecture
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      Orders & Observations

      Prof. Ramesh Jain, Prof. Ed Hammond, Dr. Ram Sriram, Charles Boicey
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      Orders & Observations Prof. Ramesh Jain, Prof. Ed Hammond, Dr. Ram Sriram, Charles Boicey
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      University of California, Irvine - Institute for Future Health (U.S.; all aspects);
      Asoka University (Japan; for Food & Nutrition application);
      NIST (U.S.; for 9P Medicine) ;
      ClearSense (Personicle)
      Show
      University of California, Irvine - Institute for Future Health (U.S.; all aspects); Asoka University (Japan; for Food & Nutrition application); NIST (U.S.; for 9P Medicine) ; ClearSense (Personicle)
    • Product Family Product Project Intent Lineage Ballot Type Target Cycle Actions
      1
      Other
      White Paper/Guidance
      Other
       
      Informative
      September 2024
      2
      FHIR
      Implementation Guide
      Create New R1 Standard
       
      STU
      January 2025
    • PHN (Personalized Health Navigation)
    • Yes
    • ISO/TC215/WG11
    • Academic/Research, Association/Goverment Agency, Consultant, Healthcare IT Vendors, Healthcare Provider/user, Patients, Payer/Third Party Administrator, Pharmaceutical/Biotech, Providers, Regulatory Agency, Standards Development Organizations (SDOs), Vendor/Manufacturer
    • Universal

    Description

      Personalized Health Navigation (PHN) utilizes intelligent navigational technologies to enable and empower individuals to intentionally pursue their own health and wellness journey.  It includes integrating comprehensive information from an individual's daily life, factoring in all relevant knowledge sources (e.g., omics, exposome, etc.),  to personalize, optimize and guide their self-directed health,  wellness, and healthcare activities.  It includes facilitating coordination with a person's family, community, caregivers and healthcare team, so as to attain their desired goals.  

      PHN includes extensive real-time digital data collection (both health, environmental & other sources), integration, filtering, and persisting into a personal chronicle (or "Personicle") that can be used for event mining, leveraged by a personal model that also integrates additional information & knowledge sources (e.g., omics or exposome). This personal model then provides the basis for navigational guidance toward a person's goals, from training to run a marathon in 3 months to better living with chronic conditions such as diabetes.

      PHN supports what has variously been termed "5P" / "9P" medicine - personalized, preventive, predictive, participative, precision + pervasive, privacy-preserving, protective, priced reasonably.  (See Bernd Blobel publications, "Managing Healthcare Transformation Towards P5 Medicine" 2022; or Ram Sriram "Transforming Healthcare Through Digital Revolutions" 2020).

      This project will begin with the development of an HL7 paper that describes PHN in detail, identifies how it can integrate existing HL7 and related standards and working group efforts, and the implementation specification gaps that need to be filled in order to achieve the overall goals of personalized health navigation systems described above.

      An initial PHN FHIR Implementation Guide is anticipated to cover the core elements of PHN; however, given the breath of the topic, a number of other FHIR IG's may be subsequently created.

      This project will be in collaboration with ISO/TC215 Health Informatics and the ISO 9472 PHN family of specifications.  ISO would provide the conceptual foundational home for PHN; whereas, HL7 would provide the implementation community, including implementation guides and prototyping / testing events.

      See PHN materials (presentations, papers) and other materials on the [HL7 Personalized Health Navigation confluence pages|https://confluence.hl7.org/pages/viewpage.action?pageId=171443414.]

       

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            todd.cooper Todd Cooper
            Todd Cooper Todd Cooper
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