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  1. Project Scope Statements/Proposals
  2. PSS-1808

International Patient Access

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    • Icon: Project Scope Statement Project Scope Statement
    • Resolution: Done
    • Icon: Medium Medium
    • None
    • Hide

      International Patient Access (IPA) defines a minimal, base set of FHIR profiles specifically intended to be used as-is, or built on top of by countries looking to enable patient access and patient-facing apps accessing data via FHIR. The emphasis and scope of this project is the exchange of health data for enabling patient access. The IG and project will do minimal content profiling. 

      Improving patients' access to their medical data is a goal shared across national boundaries; yet, the technical mechanism to do so is not. Country-specific standards and even FHIR profiles are widespread. Without a project like IPA, each country or region is responsible for defining FHIR profiles for patient access from scratch.

      Show
      International Patient Access (IPA) defines a minimal, base set of FHIR profiles specifically intended to be used as-is, or built on top of by countries looking to enable patient access and patient-facing apps accessing data via FHIR. The emphasis and scope of this project is the exchange of health data for enabling patient access. The IG and project will do minimal content profiling.  Improving patients' access to their medical data is a goal shared across national boundaries; yet, the technical mechanism to do so is not. Country-specific standards and even FHIR profiles are widespread. Without a project like IPA, each country or region is responsible for defining FHIR profiles for patient access from scratch.
    • Patient Care
    • Cross-Group Projects
      Patient Empowerment
    • Hide
      Additional HL7 work group that have asked to be labeled as interested parties include: CDS/CQI, OO, ECWG, Pharmacy and Vocab.

      Additionally, Vocab has requested that project leads present to the Vocab WG as the project develops to determine if co-sponsorship is appropriate.
      Show
      Additional HL7 work group that have asked to be labeled as interested parties include: CDS/CQI, OO, ECWG, Pharmacy and Vocab. Additionally, Vocab has requested that project leads present to the Vocab WG as the project develops to determine if co-sponsorship is appropriate.
    • TBD
    • Hide
      Global movements towards increased patient access to their health data, including federal legislation, regulation and cultural shifts across a broad range of jurisdictions and countries.
      Attempts by multi-national apps and FHIR servers to provide services in common across federal boundaries.
      Show
      Global movements towards increased patient access to their health data, including federal legislation, regulation and cultural shifts across a broad range of jurisdictions and countries. Attempts by multi-national apps and FHIR servers to provide services in common across federal boundaries.
    • Product Family Product Project Intent Lineage Ballot Type Target Cycle Actions
      		1
      FHIR
      Implementation Guide
      Create New R1 Standard
       
      STU
      January 2022
    • International Patient Access; IPA
    • Hide
      This project is specifically intended to draw from the success of US Core and will heavily rely upon existing US Core content. Additionally, we will look for additional national, and widely adopted patient access profiles for consistency. For example, see:

      https://confluence.hl7.org/display/PC/IPA%3A+national+specification+comparison
      Show
      This project is specifically intended to draw from the success of US Core and will heavily rely upon existing US Core content. Additionally, we will look for additional national, and widely adopted patient access profiles for consistency. For example, see: https://confluence.hl7.org/display/PC/IPA%3A+national+specification+comparison
    • No
    • Yes
    • No
    • The "IHE QEDm" (Query for Existing Data for mobile) profile may contain existing content from which this HL7 project should draw upon.
    • No
    • IHE profile authors.
    • Academic/Research, Association/Goverment Agency, Consultant, Healthcare IT Vendors, Healthcare Provider/user, Other, Patients, Pharmaceutical/Biotech, Providers, Regulatory Agency, Standards Development Organizations (SDOs), Vendor/Manufacturer
    • Specifically, national regulatory and legislative bodies and multi-national app & FHIR server developers are relevant audiences and stakeholders for this project.
    • Universal

    Description

      This International Patient Access specification describes how to access patient records anywhere in the world. It provides a very minimal set of access methods and rules about the content that are true everywhere. Working healthcare systems need additional rules about the access API to meet other use cases, and make many additional rules about the content based on national laws, regulations and accepted practice in order to support the provision of health in their healthcare system.

      This project will look to the US Core FHIR profiles for inspiration and the work done by the IPS project for compatibility. As part of this PSS, we will create a FHIR Implementation Guide containing guidance and profiles to support the exchange of the following data elements: 
      • CapabilityStatement
      • Allergy/Intolerance
      • DocumentReference (e.g. Clinical note/patient document)
      • Condition
      • Immunization
      • MedicationStatement (e.g. Medication Usage)
      • Patient
      • Practitioner Role
      • Practitioner
      • MedicationRequest (e.g. Prescription)
      • Vital signs and other clinical observations

       Note that this work is significantly underway at: https://github.com/HL7/fhir-ipa 

      Attachments

        1.
        		 Patient Care PSS Approval Agreed
        2.
        		 PBS Metrics PSS Approval Agreed
        3.
        		 FHIR Management Group PSS Approval Agreed
        4.
        		 External Terminology PSS Approval Agreed
        5.
        		 Cross-Group Projects PSS Approval Agreed
        6.
        		 Patient Empowerment PSS Approval Agreed

        Activity

          People

            Unassigned Unassigned
            Isaac.Vetter Isaac Vetter
            Isaac Vetter Isaac Vetter
            Robert Hausam Robert Hausam
            Robert Hausam Robert Hausam
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            Dates

              Created:
              Updated:
              Resolved: