This International Patient Access specification describes how to access patient records anywhere in the world. It provides a very minimal set of access methods and rules about the content that are true everywhere. Working healthcare systems need additional rules about the access API to meet other use cases, and make many additional rules about the content based on national laws, regulations and accepted practice in order to support the provision of health in their healthcare system.
This project will look to the US Core FHIR profiles for inspiration and the work done by the IPS project for compatibility. As part of this PSS, we will create a FHIR Implementation Guide containing guidance and profiles to support the exchange of the following data elements:
• CapabilityStatement
• Allergy/Intolerance
• Audit trail
• Care plan
• Clinical note/patient document
• Condition
• Devices
• Diagnostic report - labs, imaging
• Encounter
• Immunization
• Location
• Medication Usage
• Organization
• Patient Care team
• Patient form Definition aka Questionnaire
• Patient form aka QuestionnaireResponse
• Patient
• Practitioner Role
• Practitioner
• Prescription
• Provenance
• Related person
• Vital signs and other clinical observation
Note that this work is significantly underway at:
https://build.fhir.org/ig/grahamegrieve/ipa-candidate/artifacts.html
Project Need:
International Patient Access (IPA) defines a minimal, base set of FHIR profiles specifically intended to be used as-is, or built on top of by countries looking to enable patient access and patient-facing apps accessing data via FHIR.
Improving patients' access to their medical data is a goal shared across national boundaries; yet, the technical mechanism to do so is not. Country-specific standards and even FHIR profiles are widespread. Without a project like IPA, each country or region is responsible for defining FHIR profiles for patient access from scratch.