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  1. FHIR Specification Feedback
  2. FHIR-44606

Add Lansky Play Performance Scale to mCODE

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Details

    • Icon: Change Request Change Request
    • Resolution: Persuasive
    • Icon: Medium Medium
    • US Minimal Common Oncology Data Elements (mCODE) (FHIR)
    • 3.0.0
    • Clinical Interoperability Council
    • Karnofsky Performance Status Profile
    • Hide

      Have added a profile for Lansky Performance Status.

      Show
      Have added a profile for Lansky Performance Status.
    • Jimmy Tcheng/Bruce Bray: 6-0-0
    • Enhancement
    • Compatible, substantive
    • Yes

    Description

      Please add Lansky Play Performance Scale to your set of use cases for Performance Scale within mCODE

       

      Here at the NMDP/CIBMTR,  we have a long history of collecting assessment scores using the Karnofsky AND Lansky  https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8419065/  scores,  depending on the protocols used by the individual transplant center hospitals that submit outcomes data to the CIBMTR.  

       

      Here is a matrix showing the equivalencies between Karnofsky and Lansky:  https://kankerregister.org/media/docs/downloads/Lansky-KarnofskyconversiontableENG.pdf

       

                      We would like to use mCODE (FHIR) to intake that content.  As you can see from the link,  there is an equivalency matrix between Lansky and Karnofsky scores. https://kankerregister.org/media/docs/downloads/Lansky-KarnofskyconversiontableENG.pdf

       

                      Lansky does not have a  LOINC code nor LOINC Answers, but it does have a reference in CIEL (Columbia International eHealth Laboratory (CIEL)   https://openconceptlab.org/2022/10/19/ciel-bridging-terminology-for-the-global-community/ 

       

      I see from FHIR-24553,  Lansky was not included because there was no defined customer.  CIBMTR is definitely a customer of that data.  

       

      It should be built similarly to the Karnofsky IG, but this is the parent IG:

      https://hl7.org/fhir/us/core/STU5.0.1/StructureDefinition-us-core-observation-clinical-test.html

       

      Thanks!

       

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            Unassigned Unassigned
            jpollack@nmdp.org Jane Pollack
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              Updated:
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