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  1. FHIR Specification Feedback
  2. FHIR-43834

Adoption of Gender Harmony Recorded Sex or Gender (RSG) data element

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    • Icon: Change Request Change Request
    • Resolution: Persuasive with Modification
    • Icon: Medium Medium
    • AU Base (FHIR)
    • current
    • HL7 Australia FHIR
    • AU Base Patient
      AU Base Practitioner
      AU Base Related Person
    • Profiles and Extensions
      Terminology
      Examples
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      Discussed and approved in [2024-02-07 FHIRWG Meeting Minutes](https://confluence.hl7.org/display/HAFWG/2024-02-07+FHIRWG+Meeting+Minutes) with the following amendments to the proposal:

      • Amend the AU RSG Type code system to:
        • remove 5 document level concepts: 'passport', 'birth-certificate', 'driver-licence', 'citizenship-certificate' and birth-notification', and replace by a single concept ‘document’ defined as "Sex or gender recorded in a document"
        • add a concept for HI Service
        • remove 'au-pca'
      • Remove the AU Core Common AU RSG value set from the proposal (to keep the core bindings)
      • Amend the proposed source document types to use use LOINC where available instead of an HL7 AU type codes
      Show
      Discussed and approved in [2024-02-07 FHIRWG Meeting Minutes] ( https://confluence.hl7.org/display/HAFWG/2024-02-07+FHIRWG+Meeting+Minutes ) with the following amendments to the proposal: Amend the AU RSG Type code system to: remove 5 document level concepts: 'passport', 'birth-certificate', 'driver-licence', 'citizenship-certificate' and birth-notification', and replace by a single concept ‘document’ defined as "Sex or gender recorded in a document" add a concept for HI Service remove 'au-pca' Remove the AU Core Common AU RSG value set from the proposal (to keep the core bindings) Amend the proposed source document types to use use LOINC where available instead of an HL7 AU type codes
    • Reuben Daniels / Richard Townley-O'Neill: 16-0-1
    • Enhancement
    • Compatible, substantive
    • current

    Description

      Adopt the HL7 Gender Harmony Recorded Sex or Gender (RSG) data element and its corresponding FHIR extension (Person Recorded Sex Or Gender) from the FHIR Extensions Pack as follow
       
      1. Terminology

      • Add a new AU Base value set which may be bound to RSG.value
        • Proposed value set: See attached file: vs-common-au-recorded-sex-or-gender-1.xml

       

      • Add a new AU Base code system for which defines concepts appropriate for use as RSG.type values and includes concepts not defined in LOINC or SNOMED CT and is exhaustive of the RSG types which may be found on legal documents and includes types corresponding to digital health infrastructure services, insurance schemes, and registration/accreditation schemes.
        • Proposed code system: See attached file: cs-au-recorded-sex-or-gender-type-1.xml

       

      • Add a new AU Base value set which may be bound to RSG.type 
        • Proposed value set: See attached file: vs-common-au-recorded-sex-or-gender-type-1.xml

       

      • Add a new AU Base code system for which defines concepts appropriate for use as RSG.sourceDocument.type values.
        • Proposed code system: See attached file: cs-au-recorded-sex-or-gender-source-document-type-1.xml

       

      • Add a new AU Base value set which may be bound to RSG.sourceDocument.type 
        • Proposed value set: See attached file: vs-common-au-recorded-sex-or-gender-source-document-type-1.xml

       

      • Add a new AU Base value set which may be bound to RSG.sourceDocument.jurisdiction 
        • Proposed value set: See attached file: vs-common-au-recorded-sex-or-gender-source-document-jurisdiction-1.xml

      2. Include the GI RSG extension as follows:

      • Add profile specific implementation guidance to the profile pages.
      • Currently  AU Base Patient has the RSG extension. This change request includes changing this to ensure the referenced RSG extension is the core FHIR extension and not a local redefinition (i.e. removing the local workaround with direct referencing of the extension).

      3. Add a table describing the expected use the RSG data element (including combinations of RSG subelements) for RSG data currently in use e.g. Australian Passport, Birth Certificates, Medicare, and the HI Service.
       
      4. Update the patient-example-sex-and-gender, relatedperson-example-sex-and-gender, and practitioner-example-sex-and-gender examples to demonstrate use of the GH RSG data element.
       
      5. Remove the manual inclusion of the FHIR Extension Recorded Sex Or Gender (this was a workaround that is no longer required with direct referencing of the extension)
       
      6. Remove inclusion of the FHIR ValueSet Recorded Sex Or Gender Type (this was a workaround that is no longer required with direct referencing of the extension)vs-common-au-recorded-sex-or-gender-source-document-jurisdiction-1.xml

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            dbojicic@gmail.com DusicaBojicic
            reuben.daniels Reuben Daniels
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              Created:
              Updated:
              Resolved: