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  1. FHIR Specification Feedback
  2. FHIR-43718

Adoption of Gender Harmony Gender Identity data element

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    • Icon: Change Request Change Request
    • Resolution: Persuasive with Modification
    • Icon: Medium Medium
    • AU Base (FHIR)
    • current
    • HL7 Australia FHIR
    • AU Base Patient
      AU Base Practitioner
      AU Base Related Person
    • Profiles and Extensions
      Search Parameters
      Terminology
      Examples
    • Hide

      Discussed and approved in 2024-01-31 FHIRWG Meeting Minutes with correction to proposed SearchParameter - correct duplicate 'Practitioner' to be 'Person'.

      Show
      Discussed and approved in 2024-01-31 FHIRWG Meeting Minutes with correction to proposed SearchParameter - correct duplicate 'Practitioner' to be 'Person'.
    • Reuben Daniels / Heath Frankel : 25-0-0
    • Enhancement
    • Non-compatible
    • current

    Description

      Adopt the HL7 Gender Harmony Gender Identity data element and its corresponding FHIR extension (Individual Gender Identity) from the FHIR Extensions Pack as follows:

      1. Terminology

      • Add the following concept to the Gender Identity Response value set to support a value that indicates that the workflow did not support obtaining a gender identity value to include:  

      2. Include the GI FHIR extension (Individual Gender Identity) as follows

      • Add the extension to the AU Base Patient, AU Base RelatedPerson and AU Base Practitioner AU Base profiles with 0..* cardinality.
      • Apply AU terminology constraints, i.e. extensible binding to the updated (see 1 above) Gender Identity Response value set as agreed in https://github.com/hl7au/au-fhir-base/issues/599 and balloted in AU Base v4.1.0.
      • Add profile specific implementation guidance to the profile pages leveraging existing AU Base Patient guidance
      • IMPORTANT NOTE for AU Base Patient: proposal is to DEPRECATE use of the existing genderIdentity extension and replace it with the Individual Gender Identity extension.

      3. Search Parameters

      • Replace patient-gender-identity with a search parameter for GH Individual Gender Identity, i.e. update code, base, expression.
      • Add proposed new search parameter:

      <?xml version="1.0" encoding="utf-8"?>

      <SearchParameter xmlns="http://hl7.org/fhir">

          <id value="gender-identity" />

          <extension url="http://hl7.org/fhir/StructureDefinition/structuredefinition-fmm">

              <valueInteger value="0"/>

          </extension>

          <!-- This search parameter is for R4 & R5 use. -->

          <url value="http://hl7.org.au/fhir/SearchParameter/gender-identity" />

          <name value="GenderIdentity" />

          <status value="draft" />

          <description value="This search parameter returns resources with the Individual Gender Identity extension matching the specified code." />

          <code value="gender-identity"/>

          <base value="Patient"/>

          <base value="RelatedPerson"/>

          <base value="Person"/>

          <base value="Practitioner"/>

          <base value="PractitionerRole"/>

          <type value="token"/>

          <expression value="Patient.extension('http://hl7.org/fhir/StructureDefinition/individual-genderIdentity').value | RelatedPerson.extension('http://hl7.org/fhir/StructureDefinition/individual-genderIdentity').value" | Practitioner.extension('http://hl7.org/fhir/StructureDefinition/individual-genderIdentity').value" | Practitioner.extension('http://hl7.org/fhir/StructureDefinition/individual-genderIdentity').value" | PractitionerRole.extension('http://hl7.org/fhir/StructureDefinition/individual-genderIdentity').value"/>

          <multipleOr value="true">

              <extension url="http://hl7.org/fhir/StructureDefinition/capabilitystatement-expectation">

                  <valueCode value="MAY"/>

              </extension>

          </multipleOr>

          <multipleAnd value="true">

              <extension url="http://hl7.org/fhir/StructureDefinition/capabilitystatement-expectation">

                  <valueCode value="MAY"/>

              </extension>

          </multipleAnd>

      </SearchParameter>

      4. Update the patient-example-sex-and-gender, example relatedperson-example-sex-and-gender, example practitioner-example-sex-and-gender examples to demonstrate use of the GH GI data element.

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            dbojicic@gmail.com DusicaBojicic
            reuben.daniels Reuben Daniels
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              Created:
              Updated:
              Resolved: