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  1. FHIR Specification Feedback
  2. FHIR-35677

Gender Identity Value set

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    • Change Request
    • Status: Published (View Workflow)
    • Medium
    • Resolution: Not Persuasive with Modification
    • US Core (FHIR)
    • current
    • Cross-Group Projects
    • STU
    • US Core Gender Identity Extension
    • 10.136.1
    • Hide

      Background:

      USCDI V2 GI:

      Gender Identity A person’s internal sense of being a man, woman, both, or neither. Applicable Vocabulary Standard(s)
      Gender Identify must be coded in accordance with SNOMED CT® and HL7 Version 3 Standard, Value Sets for AdministrativeGender and NullFlavor, attributed as follows:
      • Male. 446151000124109
      • Female. 446141000124107
      • Female-to-Male (FTM)/Transgender Male/Trans Man. 407377005
      • Male-to-Female (MTF)/Transgender Female/Trans Woman. 407376001
      • Genderqueer, neither exclusively male nor female. 446131000124102
      • Additional gender category or other, please specify. nullFlavor OTH
      • Choose not to disclose. nullFlavor ASKUAdopted at 45 CFR 170.207(o)(2)

      Reasoning:

      ...

      Proposed Changes:

      Add the USCDI v2 concepts:

      • Female-to-Male (FTM)/Transgender Male/Trans Man (SNOMED CT 407377005)
      • Male-to-Female (MTF)/Transgender Female/Trans Woman (SNOMED CT 407376001)

      Update the binding to Extensible

       

       

      Show
      Background: USCDI V2 GI: Gender Identity A person’s internal sense of being a man, woman, both, or neither. Applicable Vocabulary Standard(s) Gender Identify must be coded in accordance with SNOMED CT® and HL7 Version 3 Standard, Value Sets for AdministrativeGender and NullFlavor, attributed as follows: Male. 446151000124109 Female. 446141000124107 Female-to-Male (FTM)/Transgender Male/Trans Man. 407377005 Male-to-Female (MTF)/Transgender Female/Trans Woman. 407376001 Genderqueer, neither exclusively male nor female. 446131000124102 Additional gender category or other, please specify. nullFlavor OTH Choose not to disclose. nullFlavor ASKUAdopted at 45 CFR 170.207(o)(2) Reasoning: ... Proposed Changes: Add the USCDI v2 concepts: Female-to-Male (FTM)/Transgender Male/Trans Man (SNOMED CT 407377005) Male-to-Female (MTF)/Transgender Female/Trans Woman (SNOMED CT 407376001) Update the binding to Extensible    
    • Brett Marquard/Floyd Eisenberg: 15-0-1
    • Enhancement
    • Compatible, substantive

    Description

      In the gender identity extension, http://build.fhir.org/ig/HL7/US-Core/StructureDefinition-us-core-genderIdentity.html  

      the value is bound with required strength to https://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1021.32/expansion

       

      This value set has 5 values

      As noted in the specification, there are multiple value sets for gender identity:  USCDI v2, US Core, and one proposed in Gender Harmony. Gender Harmony aside, the value set bound in the specification does not align with USCDI v2 other than the two transgender concepts mentioned in the pink call-out box.  The USCD v2 value set does not have Unknown or identifies as non-conforming gender, but does contain genderqueer and other. 

      Suggest the binding be removed with an explanation that it will be updated based on Gender Harmony results. 

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              Unassigned Unassigned
              carmela_couderc Carmela A. Couderc
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                Updated:
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