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  1. Other Specification Feedback
  2. OTHER-2427

Use of Nullflavor vs Data absent reason value set

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    • Change Request
    • Resolution: Not Persuasive with Modification
    • Medium
    • Cross-Paradigm Gender Harmony (OTHER)
    • 1.0.0-ballot
    • Terminology Infrastructure
    • Terminology
    • 13.3
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      Discussed on GHP 2023-02-20

      Also discussed in Zulip (Using FHIR Data Absent Reason Code system) 

      Agreed that GHP will align with use of FHIR DAR. This means:

      • FHIR-39238 to add an "asked but declined" code to the Gender Identity value set. This seems like a straightforward use of 'asked-declined' from the DAR code system.
      • FHIR-39231 to consider which "unknown" code to use for Sex Parameters for Clinical Use. This is the one I think needs discussion about whether the unknown code from DAR or NullFlavor is more appropriate.
      • Add a code to table 396 to represent FHIR DAR code system
      • Update all other tickets and IG content as appropriate.
      • And support a long term activity to harmonize DAR/Null across product families.

      For easy reference, these are the two codes (and associated systems) we're looking at:

      Show
      Discussed on GHP 2023-02-20 Also discussed in Zulip ( Using FHIR Data Absent Reason Code system )  Agreed that GHP will align with use of FHIR DAR. This means: FHIR-39238  to add an "asked but declined" code to the Gender Identity value set. This seems like a straightforward use of 'asked-declined' from the DAR code system. FHIR-39231  to consider which "unknown" code to use for Sex Parameters for Clinical Use. This is the one I think needs discussion about whether the unknown code from DAR or NullFlavor is more appropriate. Add a code to table 396 to represent FHIR DAR code system Update all other tickets and IG content as appropriate. And support a long term activity to harmonize DAR/Null across product families. For easy reference, these are the two codes (and associated systems) we're looking at: "UNK" from  https://terminology.hl7.org/CodeSystem-v3-NullFlavor.html "unknown" from  https://terminology.hl7.org/CodeSystem-data-absent-reason.html
    • Riki M / MaryKay M : 6-0-4
    • Enhancement
    • Compatible, substantive
    • 1.0.0-ballot

    Description

      I prefer the use of Nullflavor over FHIR Data absent reason value set for these reasons:

      #1 better alignment with CDA use of the additonal nullflavor element

      #2 better alignment with V2 (where the FHIR value set is not used)

      #3 the FHIR value set was created for a specific data element = data absent reason and provides additional content; IF there is a desire to include these codes in value sets bound to other data elements, THEN there must be an effort to harmonize ACROSS ALL product families and provide guidaince on mapping to the nullflavor value set, where appropriate to support translation between systems using different HL7 products

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          is voted on by

          Ballot Vote - The designation of a comment about a specification as related to an overall Ballot Submission BALLOT-41594 Affirmative - Ulrike Merrick : 2022-Sep-HL7 IG SEX GENDER R1 STU

          • Balloted
          relates to

          Change Request - A request for a change that is more than a simple Technical Correction to one of HL7's specifications FHIR-39231 It isn't clear why a new unknown element is included in the Sex for Clinical Use code system rather than using unknown from the null flavours.

          • Highest - This problem will block progress.
          • Published

          Change Request - A request for a change that is more than a simple Technical Correction to one of HL7's specifications FHIR-39238 We suggest add `Asked But Declined` (data-absent-reason)

          • Highest - This problem will block progress.
          • Published

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              seanmuir Sean Muir
              RikiM Ulrike Merrick
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                Updated:
                Resolved: