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  1. FHIR Specification Feedback
  2. FHIR-44127

Remove ASKU from value sets and use DAR concept instead

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    • Icon: Change Request Change Request
    • Resolution: Persuasive with Modification
    • Icon: Medium Medium
    • US Core (FHIR)
    • 7.0.0-ballot
    • Cross-Group Projects
    • US Core Birth Sex Extension
      US Core Gender Identity Extension
      US Core Observation Sexual Orientation Profile
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      1. Sexual Orientation: This value set has been updated to include "asked-declined" (preballot) and is bound in both US Core Profile and C-CDA Template Sexual Orientation
      2. Birth Sex: We also need to update the value set  to add "asked-declined" it is currently bound in the C-CDA Birth Sex: https://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1021.24/expansion
      3. Gender Identity: US Core Uses https://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1021.32/expansion, and C-CDA Uses https://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1021.101/expansion. We need to align and create one set that adds "asked-declined".
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      Sexual Orientation: This value set has been updated to include "asked-declined" (preballot) and is bound in both US Core Profile and C-CDA Template Sexual Orientation Birth Sex: We also need to update the value set  to add "asked-declined" it is currently bound in the C-CDA Birth Sex: https://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1021.24/expansion Gender Identity: US Core Uses https://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1021.32/expansion , and C-CDA Uses  https://vsac.nlm.nih.gov/valueset/2.16.840.1.113762.1.4.1021.101/expansion . We need to align and create one set that adds "asked-declined".
    • Eric Haas/Jason Vogt: 18-0-2
    • Enhancement
    • Compatible, substantive

    Description

      In value sets bound for Gender Identity, Sexual Orientation, and birth sex, the concept ASKU from null flavor value set is used. This improperly represents the intent of the data, which is supposed to document that the patient was asked but declined to answer. That concept should be used instead. In addition a concept map should be added to THO to support noting the a map between the ASKU and asked-declined concepts.

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            Unassigned Unassigned
            Rob_McClure Rob McClure
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            Dates

              Created:
              Updated:
              Resolved: