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  1. FHIR Specification Feedback
  2. FHIR-43624

Race needs to allow more than one occurrence

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    • Icon: Change Request Change Request
    • Resolution: Not Persuasive with Modification
    • Icon: Medium Medium
    • US Core (FHIR)
    • 7.0.0-ballot
    • Cross-Group Projects
    • STU
    • US Core Patient Profile
    • Hide

      The race extension allows for multiple race categories and detailed races as illustrated in the examples.

      Add the following clarifications for the reader:

      1) repeat the US Core Race and Ethnicity Extension's guidance on US Core Patient Profile page's Profile Specific Implementation Guidance:

      • This Complex Extension for race allows one or more race codes of which:
        • Must Support at least one code from OMB Race Categories
        • May include additional race codes from CDC Race Codes
        • Must include text description of race
      • This Complex Extension for ethnicity allows one or more ethnicity codes of which:
        • Must Support one code from OMB Ethnicity Categories
        • May include additional ethnicity codes from CDC Ethnicity Codes
        • Must include text description of ethnicity

      2) and within the short description, add:

      Note that multiple races are permitted; see the extension's page

      Note that multiple ethinicities are permitted; see the extension's page

      Show
      The race extension allows for multiple race categories and detailed races as illustrated in the examples. Add the following clarifications for the reader: 1) repeat the US Core Race and Ethnicity Extension's guidance on US Core Patient Profile page's Profile Specific Implementation Guidance: This Complex Extension for race allows one or more race codes of which: Must Support  at least one code from OMB Race Categories May include additional race codes from CDC Race Codes Must include text description of race This Complex Extension for ethnicity allows one or more ethnicity codes of which: Must Support  one code from OMB Ethnicity Categories May include additional ethnicity codes from CDC Ethnicity Codes Must include text description of ethnicity 2) and within the short description, add: Note that multiple races are permitted; see the extension's page Note that multiple ethinicities are permitted; see the extension's page
    • Brett Marquard/Eric Haas: 17-0-0
    • Clarification
    • Non-substantive

    Description

      A person can have mulitple races and to support only 1 occurence will skew the demographics - it is not helpful for ascertainment of health ineauities to know a person is "other race" - or even if we added a concept of "multi-race" to the value set the details would get lost. Current minimum OMB requires support of at least these 5 concepts: https://phinvads.cdc.gov/vads/ViewValueSet.action?id=DC37B373-507C-E211-87A9-0017A477041A and can add other; with the requiremetn to record race and a person's right to not disclose should also add a term to indicate person refused to share (from https://terminology.hl7.org/CodeSystem-data-absent-reason.html

      asked-declined Asked But Declined The source was asked but declined to answer.

      or From PHINVS

      PHC1175 Refused to answer

      (https://phinvads.cdc.gov/vads/ViewValueSetConcept.action?id=EB9B1908-F73B-E311-A464-0017A477041A) - as used in this vlaue set: https://phinvads.cdc.gov/vads/ViewValueSet.action?id=2C70C8B3-F43B-E311-A464-0017A477041A

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            Unassigned Unassigned
            RikiM Ulrike Merrick
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              Created:
              Updated:
              Resolved: