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  1. FHIR Specification Feedback
  2. FHIR-40375

Add ability to express CodeableConcept in Preference CarePlan.addresses

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    • Icon: Change Request Change Request
    • Resolution: Persuasive
    • Icon: Medium Medium
    • US PACIO Advance Directive Interoperability (FHIR)
    • 0.1.0
    • Patient Empowerment
    • ADI Preference Care Plan
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      Make changes requested.  Allow both coded and free text descriptions of advance directive-specific conditions:

      ADI-Specific Conditions and Prognoses
      **

      Terminal Condition and Prognosis Sample Statements:

      1.If I am diagnosed with a terminal condition, which means I have an incurable or irreversible condition that will result in my death in a relatively short period of time:

      2.If I have a terminal condition, that is, an incurable and irreversible condition that even with the administration of life-sustaining treatment will, in the opinion of the attending physician and another physician, result in death within six (6) months:

      3.If my doctors certify that my death from a terminal condition is imminent, even if life-sustaining procedures are used:

      4.Imagine you have a terminal illness that doctors believe will prevent you from meaningfully interacting with your family, friends or surroundings: 

      5.If I become terminally ill or permanently unconscious as determined by my doctor and at least one other doctor, and if I am unable to participate in decisions regarding my medical care, I intend this declaration to be honored as the expression of my legal right to authorize or refuse medical treatment:

      Unconscious, Coma, Severe Brain Damage and Prognosis Sample Statements:

      1.If I am in a state of permanent unconsciousness, which means I am in an incurable or irreversible condition in which I am not aware of myself of my environment and I show no behavioral response to my environment:

      2.If I am unconscious, in a coma, or in a vegetative state and there is little or no chance of recovery:

      3.If I am persistently unconscious, that is, I have an irreversible condition, as determined by the attending physician and another physician, in which thought and awareness of self and environment are absent:

      4.If I have permanent, severe brain damage that makes me unable to recognize my family or friends (for example, severe dementia):

      5.If I have a severe, irreversible brain injury.  I can't feed or bathe myself, and I can't communicate with others, but doctors can keep me alive for a long time:

      6.In A Coma And Not Expected To Wake Up Or Recover:  If my doctor and another health care professional both decide that I am in a coma from which I am not expected to wake up or recover, and I have brain damage, and life-support treatment would only delay the moment of my death:

      7.Permanent And Severe Brain Damage And Not Expected To Recover:  If my doctor and another health care professional both decide that I have permanent and severe brain damage, (for example, I can open my eyes, but I cannot speak or understand) and I am not expected to get better, and life-support treatment would only delay the moment of my death:

      8.Serious Illness or Brain Injury: If your health is failing due to an illness like cancer, a brain injury, or Alzheimer’s disease and doctors believe there is a low chance of recovery to your previous quality of life:

      End-Stage Condition and Prognosis Sample Statements:

      1.If I have an end-stage condition, that is, a condition caused by injury, disease, or illness, which results in severe and permanent deterioration indicated by incompetency and complete physical dependency for which treatment of the irreversible condition would be medically ineffective:

      2.If my doctors certify that I am in an end-stage condition, that is, an incurable condition that will continue in its course until death and that has already resulted in loss of capacity and complete physical dependency:

      3.Now imagine you are very sick.  You do not expect to get better and may not have long to live:

      4.Close to Death:  If my doctor and another health care professional both decide that I am likely to die within a short period of time, and life-support treatment would only delay the moment of my death:

      5.If I have a condition that will make me die very soon, even with life-sustaining treatments:

      Other Serious Condition and Prognosis Sample Statements:

      1.If I have a permanent condition where other people must help me with my daily needs (for example, eating, bathing, toileting):

      2.If I need to use a breathing machine and be in bed for the rest of my life:

      3.If I have pain and other severe symptoms that cause suffering and can't be relieved:

      4.In Another Condition Under Which I Do Not Wish To Be Kept Alive:  If there is another condition under which I do not wish to have life-support treatment, I describe it below.  In this condition, I believe that the costs and burdens of life-support treatment are too much and not worth the benefits to me:

      5.Accident or Temporary Illness: Imagine a sudden injury or illness, like a car accident or Covid-19. Doctors believe there is a good chance of recovery to your previous quality of life:

        “Health issues this plan addresses”

      to

        "The future potential health scenario or condition in which this ADI preference care plan is relevant"

      • To the comment add:

        "Identified future potential health scenarios should not be expressed as a Condition resource.   Instead, the future health scenario codes are to be placed in the padi-condition-code-extension.
        If there is conditional (AND/OR) logic involved in indicating the situation in which the care plan is   to be considered to address, this is to be included in addresses.text as text”

      “Identified future potential health scenarios that the person has stated specific goals, preferences and priorities for care delivery against.  These health scenarios are not intended to impact the current, active condition list and are therefore to be found in the padi-condition-…”

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      Make changes requested.  Allow both coded and free text descriptions of advance directive-specific conditions: ADI-Specific Conditions and Prognoses ** Terminal Condition and Prognosis Sample Statements : 1.If I am diagnosed with a terminal condition , which means I have an incurable or irreversible condition that will result in my death in a relatively short period of time: 2.If I have a terminal condition , that is, an incurable and irreversible condition that even with the administration of life-sustaining treatment will, in the opinion of the attending physician and another physician, result in death within six (6) months: 3.If my doctors certify that my death from a terminal condition is imminent, even if life-sustaining procedures are used: 4.Imagine you have a terminal illness that doctors believe will prevent you from meaningfully interacting with your family, friends or surroundings:  5.If I become terminally ill or permanently unconscious as determined by my doctor and at least one other doctor, and if I am unable to participate in decisions regarding my medical care, I intend this declaration to be honored as the expression of my legal right to authorize or refuse medical treatment: Unconscious, Coma, Severe Brain Damage and Prognosis Sample Statements: 1.If I am in a state of permanent unconsciousness , which means I am in an incurable or irreversible condition in which I am not aware of myself of my environment and I show no behavioral response to my environment: 2.If I am unconscious , in a coma , or in a vegetative state and there is little or no chance of recovery: 3.If I am persistently unconscious , that is, I have an irreversible condition , as determined by the attending physician and another physician, in which thought and awareness of self and environment are absent: 4.If I have permanent, severe brain damage that makes me unable to recognize my family or friends (for example, severe dementia): 5.If I have a severe, irreversible brain injury .  I can't feed or bathe myself, and I can't communicate with others, but doctors can keep me alive for a long time: 6. In A Coma And Not Expected To Wake Up Or Recover :  If my doctor and another health care professional both decide that I am in a coma from which I am not expected to wake up or recover, and I have brain damage, and life-support treatment would only delay the moment of my death: 7. Permanent And Severe Brain Damage And Not Expected To Recover :  If my doctor and another health care professional both decide that I have permanent and severe brain damage, (for example, I can open my eyes, but I cannot speak or understand) and I am not expected to get better, and life-support treatment would only delay the moment of my death: 8. Serious Illness or Brain Injury : If your health is failing due to an illness like cancer, a brain injury, or Alzheimer’s disease and doctors believe there is a low chance of recovery to your previous quality of life: End-Stage Condition and Prognosis Sample Statements: 1.If I have an end-stage condition , that is, a condition caused by injury, disease, or illness, which results in severe and permanent deterioration indicated by incompetency and complete physical dependency for which treatment of the irreversible condition would be medically ineffective: 2.If my doctors certify that I am in an end-stage condition , that is, an incurable condition that will continue in its course until death and that has already resulted in loss of capacity and complete physical dependency: 3.Now imagine you are very sick .  You do not expect to get better and may not have long to live : 4. Close to Death :  If my doctor and another health care professional both decide that I am likely to die within a short period of time, and life-support treatment would only delay the moment of my death: 5.If I have a condition that will make me die very soon , even with life-sustaining treatments: Other Serious Condition and Prognosis Sample Statements: 1.If I have a permanent condition where other people must help me with my daily needs (for example, eating, bathing, toileting): 2.If I need to use a breathing machine and be in bed for the rest of my life : 3.If I have pain and other severe symptoms that cause suffering and can't be relieved : 4.In Another Condition Under Which I Do Not Wish To Be Kept Alive:  If there is another condition under which I do not wish to have life-support treatment, I describe it below.  In this condition, I believe that the costs and burdens of life-support treatment are too much and not worth the benefits to me: 5. Accident or Temporary Illness : Imagine a sudden injury or illness, like a car accident or Covid-19. Doctors believe there is a good chance of recovery to your previous quality of life: Also to PADI- PreferenceCarePlan CarePlan.addresses: Change the short description from:   “Health issues this plan addresses” to   "The future potential health scenario or condition in which this ADI preference care plan is relevant" To the comment add:   "Identified future potential health scenarios should not be expressed as a Condition resource.   Instead, the future health scenario codes are to be placed in the padi-condition-code-extension.   If there is conditional (AND/OR) logic involved in indicating the situation in which the care plan is   to be considered to address, this is to be included in addresses.text as text” “Identified future potential health scenarios that the person has stated specific goals, preferences and priorities for care delivery against.  These health scenarios are not intended to impact the current, active condition list and are therefore to be found in the padi-condition-…”
    • Dave Hill / Virginia Lorenzi : 7-0-0
    • Correction
    • Compatible, substantive

    Description

      CarePlan addresses in FHIR R4 is only a Reference(Condition). The issue is that Condition resources are defined as a "concept that has risen to a level of concern", but most of the conditions for the Preference CarePlan are hypothetical and do not rise the this level. These hypothetical conditions that indicate when a CarePlan should be considered and not be confused with conditions a patient has, has had, is suspected of having or is at any sort of risk of having.

      Pre-adopt the FHIR R5 CodeableReference by:

      • Create the simple extension padi-conditon-code-extension with
      • To PADI-PreferenceCarePlan add padi-conditon-code-extension under CarePlan.addresses

      Also to PADI-PreferenceCarePlan CarePlan.addresses:

      • Change the short description to "The situation or condition in which this care plan should be considered to address"
      • To the comment add "Hypothetical conditions for which the patient does not have, has not had, is not suspected to have, or is not at a risk to have should not be included as Condition resources. Instead, the condition codes are to be placed in the padi-conditon-code-extension.
        If there is conditional (AND/OR) logic involved in indicating the situation in which the care plan is to be considered to address, this is to be included in addresses.display as text"

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              Updated:
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