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  1. FHIR Specification Feedback
  2. FHIR-38647

Change cardinality of Condition.extension:histologyMorphologyBehavior

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    • Icon: Change Request Change Request
    • Resolution: Not Persuasive with Modification
    • Icon: Medium Medium
    • US Minimal Common Oncology Data Elements (mCODE) (FHIR)
    • 2.0.0 [deprecated]
    • Clinical Interoperability Council
    • Histology-Morphology-Behavior Extension
      Primary Cancer Condition Profile
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      The proposed resolution follows lengthy discussion with the submitter and SMEs in the mCODE Technical Review Group:

      1. It was agreed that the original description of the issue was not entirely clear. The issue is really whether it makes sense to allow for separate morphology and behavior codes, and if so, is it better to have two extensions or change the existing extension to 0..*.
      2. For ICD-O-3 encoded diagnoses, we currently recommend putting the morphology code and the behavior code together, following common convention, e.g. 8410/2. This could be separated into morphology (8410) and behavior (2). However, this is not common practice and not the way most systems represent ICD-O-3. Therefore, a change is not required or recommended.
      3. For SNOMED CT encoding, the STU 2 representation requires a code that precoordinates morphology and behavior. In most cases, the required codes are available, and Scott Campbell is developing and submitting codes that are currently missing. Furthermore, in many cases the post-coordinated codes that would result from forcing the separation of morphology and behavior are NOT available (e.g., there is no code from adenocarcinoma, only codes for adenocarcinoma in situ and malignant adenocarcinoma. Separating the current field into 2 fields might cause more problems than it solves.
      4. Changing from 0..1 to 0..* is not backward compatible, and that is a concern for implementers.
      5. For registry reporting where ICD-O-3 is required, mappings between SNOMED and ICD-O-3 are available.

      Based on these considerations, it was decided to not make a change to the cardinality or add another extension for behavior. 

      An error was noted in the documentation on this page where the Condition.code for ICD-O-3 is described. This will be fixed.

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      The proposed resolution follows lengthy discussion with the submitter and SMEs in the mCODE Technical Review Group: It was agreed that the original description of the issue was not entirely clear. The issue is really whether it makes sense to allow for separate morphology and behavior codes, and if so, is it better to have two extensions or change the existing extension to 0..*. For ICD-O-3 encoded diagnoses, we currently recommend putting the morphology code and the behavior code together, following common convention, e.g. 8410/2. This could be separated into morphology (8410) and behavior (2). However, this is not common practice and not the way most systems represent ICD-O-3. Therefore, a change is not required or recommended. For SNOMED CT encoding, the STU 2 representation requires a code that precoordinates morphology and behavior. In most cases, the required codes are available, and Scott Campbell is developing and submitting codes that are currently missing. Furthermore, in many cases the post-coordinated codes that would result from forcing the separation of morphology and behavior are NOT available (e.g., there is no code from adenocarcinoma, only codes for adenocarcinoma in situ and malignant adenocarcinoma. Separating the current field into 2 fields might cause more problems than it solves. Changing from 0..1 to 0..* is not backward compatible, and that is a concern for implementers. For registry reporting where ICD-O-3 is required, mappings between SNOMED and ICD-O-3 are available. Based on these considerations, it was decided to not make a change to the cardinality or add another extension for behavior.  An error was noted in the documentation on this page where the Condition.code for ICD-O-3 is described. This will be fixed.
    • Jim McClay/Saul Kravitz : 8-0-0
    • Clarification
    • Non-substantive
    • Yes

    Description

      The STU 2 specs assign a cardinality of 0...1 to the Condition.extension:histologyMorphologyBehavior element, which works well if an organization has a license to use ICD-O-3 (which can represent histology and behavior). 

      However, if an organization does not have a license to use ICD-O-3 and they need to represent histology, morphology, and behavior with >1 SNOMED CT code, the current specs will not support this. Note, SNOMED CT codes are included in the current value set.

      It seems a cardinality of 0…* might better support transmission of histology, morphology, and behavior if these concepts are not all wrapped up in one ICD-O-3 code.

       

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            ssebastian Sharon Sebastian
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              Updated:
              Resolved: