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  1. FHIR Specification Feedback
  2. FHIR-35375

Add a challenge related to the sensitivity of SDOH data

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    • Icon: Change Request Change Request
    • Resolution: Persuasive
    • Icon: Highest Highest
    • US SDOH Clinical Care (FHIR)
    • 1.1.0
    • Patient Care
    • STU
    • Gravity Background [deprecated]
    • 3.2
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      Item #4 (below) will be added to the “Gravity Project Challenge Statement” section:

      The systematic documentation and aggregation of SDOH data in EHRs and related systems is limited due to the following:

      1. Limited understanding by the health system of the value and use of such data for clinical care and population health management;
      2. Capture of SDOH data in unstructured and non-standardized formats, which inhibits the ability to normalize, exchange, and aggregate the data regardless of the data source; and
      3. Gaps in and overlap between existing terminologies and codes available to represent SDOH-related activities undertaken in clinical delivery settings.
      4. SDOH data is sensitive, personal information with significant privacy and security considerations. As with all personal data, regulatory and policy considerations related to consent and exchange of this data should be adhered to.
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      Item #4 (below) will be added to the “Gravity Project Challenge Statement” section: The systematic documentation and aggregation of SDOH data in EHRs and related systems is limited due to the following: Limited understanding by the health system of the value and use of such data for clinical care and population health management; Capture of SDOH data in unstructured and non-standardized formats, which inhibits the ability to normalize, exchange, and aggregate the data regardless of the data source; and Gaps in and overlap between existing terminologies and codes available to represent SDOH-related activities undertaken in clinical delivery settings. SDOH data is sensitive, personal information with significant privacy and security considerations. As with all personal data, regulatory and policy considerations related to consent and exchange of this data should be adhered to.
    • Bob Dieterle / Laura Heerman-Langford : 8-0-0
    • Clarification
    • Non-substantive
    • Yes

    Description

      We recommend adding language to the Challenge Statement to acknowledge challenges associated with collecting, managing, and exchanging SDOH data, given that it is particularly sensitive in nature. 

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            Unassigned Unassigned
            molly.malavey@ama-assn.org Molly Reese (Inactive)
            Molly Reese (Inactive)
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              Created:
              Updated:
              Resolved: