Details
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Change Request
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Resolution: Not Persuasive with Modification
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Highest
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US SDOH Clinical Care (FHIR)
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current
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Patient Care
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STU
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SDOHCC Observation Ethnicity OMB
SDOHCC Observation Race OMB -
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Bob Dieterle / Laura Heerman-Langford : 8-0-0
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Clarification
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Non-substantive
Description
Feedback with respect to these two values in the value set for Observation.method: • "self-reported" - Ideally, this would be the gold-standard method for collecting race or ethnicity data in individuals who are competent and of age to provide such information. • "reported-by-related-person" - Given that race is a social construct, there is a likelihood that a "related person" could identify an individual in a different way than the individual self-identifies. |
For these reasons, the use of "reported-by-related-person" should be limited to one of the following:
1) minor patients (e.g., parents/guardians would provide the information on behalf of the patient)
2) patients who are incompetent or incapable of providing this information themselves (e.g., guardians/caretakers would provide the information on behalf of the patient)
Additionally, the definition for "reported-by-related-person" should clarify that this reason should only be used in the above two cases (for minors or patients who are not competent to answer on their own behalf) and that "reported-by-related-person" does not apply when a competent, adult patient is relaying information to someone who is merely filling out a form on their behalf. In this case, we feel that the method should be "self-reported".|
Attachments
Issue Links
- is voted on by
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BALLOT-27612 Negative - Molly Reese : 2022-Jan-FHIR IG SDOH R1 STU
- Balloted