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  1. FHIR Specification Feedback
  2. FHIR-35034

Patient example should mask PII for research

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    • Icon: Change Request Change Request
    • Resolution: Persuasive with Modification
    • Icon: Medium Medium
    • US MedMorph Research Data Exchange Content IG (FHIR)
    • 0.1.0
    • Public Health
    • Patient Example
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      Change the PH Patient profile to allow other values for dataAbsentReason. The eCR specification could further constrain the PH Patient to just allow "masked".

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      Change the PH Patient profile to allow other values for dataAbsentReason. The eCR specification could further constrain the PH Patient to just allow "masked".
    • Becky Angeles / Brian Gugerty : 30-0-0
    • Correction
    • Compatible, substantive

    Description

      Some PII contained in the Patient resource is unlikely to appear in a research context, such as the patient's name. While the US Core profiles require that some of these attributes are present, suggest using data absent reason set to masked to remove this type of information from the example.

      I realize that the CDMH IG does this in their example too.

      The approach used in the Central Cancer Registry Reporting Content IG of using the US Public Health Patient profile would essentially address this.

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            nageshbashyam Nagesh Bashyam
            andy.gregorowicz Andy Gregorowicz
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              Updated:
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