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  1. FHIR Specification Feedback
  2. FHIR-35022

Use a single Observation Resource to include both Race and Ethnicity Observations

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    • Icon: Change Request Change Request
    • Resolution: Not Persuasive with Modification
    • Icon: Medium Medium
    • US SDOH Clinical Care (FHIR)
    • 1.1.0
    • Patient Care
    • STU
    • SDOHCC Observation Ethnicity OMB
      SDOHCC Observation Race OMB
    • Draft Specifications for Personal Characteristics
    • 16.2
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      While there is a specific recommendation regarding the collection of race and ethnicity at the same time, they are frequently collected separately and should be represented as separate observations.  In addition, we have tried to follow the current US Core approach to race and ethnicity which uses separate extension to the Patient profile.   Finally, the use of dataAbsentReason can only apply to all components and would prevent the exchange of race or ethnicity without both being present.

      Should have further conversations regarding Personal Characteristics or a parent grouping for multiple observations as part of one grouping (need to consider timing of data collection).  Will require a new ticket to create a grouping observation.

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      While there is a specific recommendation regarding the collection of race and ethnicity at the same time, they are frequently collected separately and should be represented as separate observations.  In addition, we have tried to follow the current US Core approach to race and ethnicity which uses separate extension to the Patient profile.   Finally, the use of dataAbsentReason can only apply to all components and would prevent the exchange of race or ethnicity without both being present. Should have further conversations regarding Personal Characteristics or a parent grouping for multiple observations as part of one grouping (need to consider timing of data collection).  Will require a new ticket to create a grouping observation.
    • Bob Dieterle / Laura Herrman-Langford: 4-0-1
    • Clarification
    • Non-substantive

    Description

      Per the draft specification recommendations " This standard recommends that both race and ethnicity should be collected, not just one". In order to support not collecting race without including the related ethnicity, suggest including both in a single Observation resource with use of the hasMember element. 

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            emmanurse Emma Jones
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