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  1. FHIR Specification Feedback
  2. FHIR-34036

Patient Ethnicity does not have the same Null options as Race

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    • Change Request
    • Status: Published (View Workflow)
    • Medium
    • Resolution: Persuasive with Modification
    • US Core (FHIR)
    • 4.0.0
    • Cross-Group Projects
    • US Core Patient Profile
    • Profiles and Extensions
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      Background:

      USCDI reference terminology and VSAC and PHINVADS does not support ASKU and UNK at 'ethnicGroupCode'.

      Despite this there is support from implementers to suport this since EHRs have to capture it anyway.

      Decision:

      Will add UNK and ASKU to all Race and Ethnicity ValueSets where not already present.

      Trade offs:

      The downside of  changing a small stable 25 yr old set of codes.  Also this diverges  from and precludes leveraging VSAC unless  updates occur there as well

      Follow up:

      Will follow up with ONC and VSAC steward recommend updates to the reference terminology to align.

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      Background: USCDI reference terminology and VSAC and PHINVADS does not support ASKU and UNK at 'ethnicGroupCode'. Despite this there is support from implementers to suport this since EHRs have to capture it anyway. Decision: Will add UNK and ASKU to all Race and Ethnicity ValueSets where not already present. Trade offs: The downside of  changing a small stable 25 yr old set of codes.  Also this diverges  from and precludes leveraging VSAC unless  updates occur there as well Follow up: Will follow up with ONC and VSAC steward recommend updates to the reference terminology to align.
    • Linda Michaelsen / Brett Marquard: 28-0-0
    • Correction
    • Non-compatible

    Description

      In US Core for race, you are allowed two extensions for null, ASKU and UNK.  However, ethnicity does not have these options.  We need the same options on ethnicity.

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            Brett.Marquard Brett Marquard
            lmichaelsen Linda Michaelsen
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              Created:
              Updated:
              Resolved: