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  1. FHIR Specification Feedback
  2. FHIR-31092

Suggest adding language on potential harms, limitations, or unknowns associated with such data collection and exchange

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    • Icon: Change Request Change Request
    • Resolution: Persuasive with Modification
    • Icon: Highest Highest
    • US SDOH Clinical Care (FHIR)
    • 0.1.0 [deprecated]
    • Patient Care
    • Gravity Background [deprecated]
    • 2
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      incorporate reference to the Gravity Data Principles that cover the potential harms that may result from the collection and exchange of the SDOH information without proper protections and guidelines. Add links to the suggested references. 

      Take this back to Patient Care WG and have them weigh in on the value of including specific examples of harm in the IG.

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      incorporate reference to the Gravity Data Principles that cover the potential harms that may result from the collection and exchange of the SDOH information without proper protections and guidelines. Add links to the suggested references.  Take this back to Patient Care WG and have them weigh in on the value of including specific examples of harm in the IG.
    • Bob Dieterle / Jay Lyle : 7-0-3
    • Enhancement
    • Non-substantive

    Description

      Support inclusion of these positive examples of what SDOH data can be used for. Suggest also including language on potential harms, limitations, or unknowns associated with such data collection and exchange, including the creation or worsening of inequities so that implementers can consider strategies to mitigate these issues (see e.g., https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6342587/ and https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6141653/).

      Existing Wording:

      The capture and exchange of interoperable data allows providers to share specific information with health plan payers who seek to aggregate and analyze population health data for the purpose of stratifying risk, enabling data-driven financial models for value-based payment, addressing the opioid epidemic, supporting prevention and control of chronic disease, encouraging community-based care coordination, and other activities that are proving to substantially reduce overall health care expenditures. Population health data can include patient demographics, patient access points, service delivery histories, outcome breakdowns and referrals. The collection of this data can help inform payer organizations policies, investment strategies, and community engagement in addition to helping them better understand and address social needs within the community.

      (Comment 15 - imported by: Robert Dieterle)

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            celine_lefebvre Celine Lefebvre
            Celine Lefebvre
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