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  1. FHIR Specification Feedback
  2. FHIR-25184

Add guidance on how to handle historical (poorly coded) data when using extensible and required value set bindings

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    • Icon: Change Request Change Request
    • Resolution: Unresolved
    • Icon: Medium Medium
    • FHIR Core (FHIR)
    • STU3
    • FHIR Infrastructure
    • Terminologies
    • Enhancement

    Description

      The current definition of extensible and required valueset bindings make it difficult to communicate these types of data that may be poorly coded:

      • Historical data
      • Patient-provided data
      • 3rd-party data (e.g. data from paid claims from payers, or uncoded data from an HIE)
      • Data from international domains
      • Data entered by non-standard end user workflow (e.g. scanned or manually transcribed lab reports)
      • etc.

      There was good discussion about this in this thread:https://chat.fhir.org/#narrow/stream/179175-argonaut/topic/US.20Core.3AExtensible.20and.20Required.20bindings.20for.20historical.20data

      A few solutions were proposed. I'm not suggesting any specific one, but I do think we need an option that lets us degrade gracefully when some data is not coded as well as we'd like.

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            cooper.thompson Cooper Thompson
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            Dates

              Created:
              Updated: