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  1. V2 Specification Feedback
  2. V2-25427

SFCU and its value sets are discriminatory and promote cisnormativity

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    • Icon: Change Request Change Request
    • Resolution: Not Persuasive with Modification
    • Icon: Highest Highest
    • V2.x Message Specification (V2)
    • V2.9
    • Patient Administration
    • Control (Chapter 2)
    • CH02C_Tables_2022SEP_nomarkup PDF, Table 0828 on page 788
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      We are making several updates to the SFCU concept to mitigate some of these sorts of concerns, including renaming it from Sex for Clinical Use to Sex Parameters for Clinical Use.

      New name:  Sex Parameter for Clinical Use

      New Description:  A Sex Parameter for Clinical Use is a parameter that provides guidance on how a recipient should apply settings or reference ranges that are derived from observable information such as an organ inventory, recent hormone lab tests, genetic testing, menstrual status, obstetric history, etc.  This property is intended for use in clinical decision making, and indicates that treatment or diagnostic tests should consider best practices associated with the relevant reference population.  When exchanging these concepts, refer to the guidance in the [Gender Harmony Implementation Guide](http://hl7.org/xprod/ig/uv/gender-harmony/).

      This will likely be placed in Chapter 3 Section 3.4.21.

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      We are making several updates to the SFCU concept to mitigate some of these sorts of concerns, including renaming it from Sex for Clinical Use to Sex Parameters for Clinical Use. New name :  Sex Parameter for Clinical Use New Description :  A Sex Parameter for Clinical Use is a parameter that provides guidance on how a recipient should apply settings or reference ranges that are derived from observable information such as an organ inventory, recent hormone lab tests, genetic testing, menstrual status, obstetric history, etc.  This property is intended for use in clinical decision making, and indicates that treatment or diagnostic tests should consider best practices associated with the relevant reference population.  When exchanging these concepts, refer to the guidance in the  [Gender Harmony Implementation Guide] ( http://hl7.org/xprod/ig/uv/gender-harmony/ ). This will likely be placed in Chapter 3 Section 3.4.21.
    • Riki Merrick / Brian Postlethwaite : 4-0-2
    • Enhancement
    • Compatible, substantive

    Description

      Some SGWG members felt sex for clinical use and its value sets are discriminatory that promotes cisnormativity, so we propose to vote NEGATIVE for this section As an alternative, we suggest to change the label to Parameters for clinical use and separate it from Sex altogether, since other non-sex related clinical conditions may require special/specific considerations as well. Another suggestion is to use Organ inventory with a defined value set to remove having to make assumptions about sex status altogether.

      (Comment 8 - imported by: Ron G. Parker)

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            RikiM Ulrike Merrick
            Rongparker Ron G. Parker
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