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  1. Project Scope Statements/Proposals
  2. PSS-1655

Create a white paper on patient contributed data

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    • Icon: Project Proposal Project Proposal
    • Resolution: Done
    • Icon: Medium Medium
    • None
    • Patient Empowerment
    • To Be Determined
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      Create a white paper on patient contributed data. The goal would be to define the concept, scan and summarize related HL7 materials/initiatives, identify gaps in what is addressed, and recommend a path forward. Note workflow.

      This is an important project because there is increasing recognition that patients are a useful source of data: health status, outcomes, values, and goals. In addition, consumers have access to a range of increasingly sophisticated tools to monitor and manage both health and illness. The data from these tools can provide insights into onset of illness, correlations between exacerbations of illness and environmental factors, and enable early identification of problems. All of this data can support the care of individuals and collaboration with physicians but only if it can be stored, viewed, and shared in standard ways.
      Show
      Create a white paper on patient contributed data. The goal would be to define the concept, scan and summarize related HL7 materials/initiatives, identify gaps in what is addressed, and recommend a path forward. Note workflow. This is an important project because there is increasing recognition that patients are a useful source of data: health status, outcomes, values, and goals. In addition, consumers have access to a range of increasingly sophisticated tools to monitor and manage both health and illness. The data from these tools can provide insights into onset of illness, correlations between exacerbations of illness and environmental factors, and enable early identification of problems. All of this data can support the care of individuals and collaboration with physicians but only if it can be stored, viewed, and shared in standard ways.

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          janoldenburg Jan Oldenburg
          janoldenburg Jan Oldenburg
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