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  1. Other Specification Feedback
  2. OTHER-2636

Questions about Gender Identity minimum value set

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    • Icon: Change Request Change Request
    • Resolution: Persuasive with Modification
    • Icon: Highest Highest
    • Cross Paradigm Gender Harmony - Sex and Gender Representation (OTHER)
    • 1.0.0-ballot
    • Terminology Infrastructure
    • Terminology
    • 13.3
    • Hide

      The reference to LOINC is only for the concept of "Gender Identity", not for the value set or any of its members. The wording will be changed to:

       

      There are two different terminologies that are relevant for gender identity.  The LOINC code 76691-5 identities the Gender Identity concept itself, while a value set using SNOMED codes can be used to represent the gender identities.

      The Gender Identity terminology in this guide is intended to be a minimum value set.  Different jurisdictions are expected and encouraged to adopt their own gender identity codes that represent the identities of their communities.  For example, in the United States, two-spirit may be included in the value set, while in South Asia, hijra may be included.

      Gender Identity minimum value set is built using concepts from the SNOMED CT International edition code system.  In addition the value set includes the HL7 null flavor UNK to be used if the gender is not known, as well as the asked-declined code from Data Absent Reason to represent case where an individual does not wish to provide their gender identity.

      Please note that CDA requires the use of value sets that do not include null flavor concepts, therefore the CDA entry templates bind to a separate “core” value set of SNOMED CT concepts, and that value set is used to build the overall gender identity minimum value set.

       

      see minutes from: https://confluence.hl7.org/display/VOC/2023-03-02+GI-SPCU+Subgroup+Meeting+Agenda+and+Notes

       

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      The reference to LOINC is only for the concept of "Gender Identity", not for the value set or any of its members. The wording will be changed to:   There are two different terminologies that are relevant for gender identity.  The LOINC code  76691-5  identities the Gender Identity concept itself, while a value set using SNOMED codes can be used to represent the gender identities. The Gender Identity terminology in this guide is intended to be a minimum value set.  Different jurisdictions are expected and encouraged to adopt their own gender identity codes that represent the identities of their communities.  For example, in the United States, two-spirit may be included in the value set, while in South Asia, hijra may be included. Gender Identity minimum value set  is built using concepts from the  SNOMED CT International edition  code system.  In addition the value set includes the HL7 null flavor UNK to be used if the gender is not known, as well as the asked-declined code from Data Absent Reason to represent case where an individual does not wish to provide their gender identity. Please note that CDA requires the use of value sets that do not include null flavor concepts, therefore the CDA entry templates bind to a separate “core” value set of SNOMED CT concepts, and that value set is used to build the overall gender identity minimum value set.   see minutes from: https://confluence.hl7.org/display/VOC/2023-03-02+GI-SPCU+Subgroup+Meeting+Agenda+and+Notes  
    • Riki Merrick / Craig Parker : 11-0-6
    • Clarification
    • Non-substantive

      Two comments have been made:
      1. SNOMED CT is working hard to build the value set.
      In the meantime, could a set of temporary values be provided for any use case projects?
      2. While it is stated that the set of values will be adopted from the SNOMED CT code system,
      why is a LOINC design code provided?
      It is better to build a valueset from one code system with the best current practice.
      Please provide more guidance to clarify direction on how and what to do to create the value set of gender identity.

      Existing Wording:

      Gender Identity minimum value set is built using concepts from the SNOMED CT International edition code system. SNOMED International has put significant effort into improving the representation of gender concepts and while that work is not complete, the concepts included in the gender identity value set represent affirming and useful representations of gender concepts.

      (Comment 78 - imported by: Lloyd McKenzie)

            Rob_McClure Rob McClure
            Rongparker Ron G. Parker
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              Updated:
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