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    • Icon: Change Request Change Request
    • Resolution: Persuasive
    • Icon: Medium Medium
    • Cross Paradigm Gender Harmony - Sex and Gender Representation (OTHER)
    • 1.0.0-ballot
    • Terminology Infrastructure
    • STU
    • Background
      Model
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      Add the following to the Out of scope section

      Privacy and Sensitivity of gender harmony related concepts. This topic is of vital importance for standards and implementations and while not addressed in this guide, we note that there is significant coverage of the negative outcomes when an individual's gender attributes are exposed (or used) incorrectly. We also note that there are sensitivity vocabulary in HL7 IGs that can be used to tag data that is "GENDER" sensitive. Additional work will be necessary to fully characterize how to best address this topic.

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      Add the following to the Out of scope section Privacy and Sensitivity of gender harmony related concepts. This topic is of vital importance for standards and implementations and while not addressed in this guide, we note that there is significant coverage of the negative outcomes when an individual's gender attributes are exposed (or used) incorrectly. We also note that there are sensitivity vocabulary in HL7 IGs that can be used to tag data that is "GENDER" sensitive. Additional work will be necessary to fully characterize how to best address this topic.
    • MaryKay McDaniel / Christopher Gracon : 6-0-3
    • Clarification
    • Non-substantive
    • Yes

      There is significant coverage of the negative outcomes when an individual's gender attributes are exposed (or used) incorrectly. Yet there is not even a mention of Privacy and Sensitivity as a future work (1.4.2 Out-of-Scope).

      There are sensitivity vocabulary (in the HCS) that can be used to tag data that is "GENDER" sensitive. There could be mentions on how a Consent policy could have special handling for GENDER sensitive data. There could be mentions that the patient may have one gender identity for general-public use, and a different one for confidential interactions use.

      Note that GENDER security label can also be used on clinical data, such as a gender altering procedure, so this is not limited to use in Gender Identity.

      Giving the patient the ability to control how their data are used is important to all patient community, especially those with sensitive topics.

            Unassigned Unassigned
            john_moehrke John Moehrke
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