Details
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Change Request
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Resolution: Persuasive
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Medium
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US Minimal Common Oncology Data Elements (mCODE) (FHIR)
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1.16.0 [deprecated]
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Clinical Interoperability Council
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Evidence Type [deprecated]
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Saul Kravitz/Sherita Alai:4-0-0
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Correction
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Non-compatible
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Yes
Description
CodeX state registry reporting use case stakeholders are concerned about the limited number of concepts available in the STU2 Cancer Disease Status Evidence Type Value Set.
EHRs usually capture the "evidence type" at a much more granular level and will be forced to "map up" to the available higher-level concepts in the value set. On the registry reporting side, research requires more granular details about the evidence type, which cannot be derived from the available higher-level concepts.
We request that you consider including descendants of each current concept in the value set definition. Of note, CDC stakeholders are in the midst of creating a proposed value set that is based off descendants of each concept, but then removes concepts that are not relevant.
Of additional note, this value set has a "required" binding strength, which complicates matters.
Please contact Wendy Scharber (ewy1@cdc.gov), Wendy Blumenthal (wfb6@cdc.gov), and Sharon Sebastian (ssebastian@mitre.org) for additional details. I have attached a draft version of the proposed updated value set, however additional review and edits are required.