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  1. FHIR Specification Feedback
  2. FHIR-31280

Sharing of patient data needs consent

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    • Icon: Change Request Change Request
    • Resolution: Persuasive with Modification
    • Icon: Highest Highest
    • US SDOH Clinical Care (FHIR)
    • 0.1.0 [deprecated]
    • Patient Care
    • Home Page [deprecated]
    • overview, third bullet
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      Will break this into multiple items where specific uses are

      1) based on counts of members in a population (e.g. quality measures),

      2) deidentified data (quality improvement, research, population health) and

      3) other uses require identified data (e.g. public health and are subject to either or both regulation and patient consent).

       

      Reference HHS/CMS standards for deidentification as additional information.

       

      Show
      Will break this into multiple items where specific uses are 1) based on counts of members in a population (e.g. quality measures), 2) deidentified data (quality improvement, research, population health) and 3) other uses require identified data (e.g. public health and are subject to either or both regulation and patient consent).   Reference HHS/CMS standards for deidentification as additional information.  
    • Bob Dieterle / Jay Lyle : 9-0-2
    • Clarification
    • Non-substantive

    Description

      Patient data should not be used beyond the care encounter without their express permission.

      Existing Wording:

      Gather and aggregate SDOH data for uses beyond the point of care (e.g. public health, population health, quality measurement, risk adjustment, quality improvement, and research)

      Proposed Wording:

      Gather and aggregate SDOH data for uses beyond the point of care (e.g. public health, population health, quality measurement, risk adjustment, quality improvement, and research), according to the patient's perferences and permissions.

      (Comment 212 - imported by: Robert Dieterle)

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            caterina.lasome Caterina Lasome (Inactive)
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              Updated:
              Resolved: