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  1. FHIR Specification Feedback
  2. FHIR-30751

Describe the workflow for the hospital registry reporting to show how FHIR could be used to transmit cancer information for ambulatory care practices.

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    • Icon: Change Request Change Request
    • Resolution: Persuasive
    • Icon: Highest Highest
    • US Making EHR Data More available for Research and Public Health (MedMorph) (FHIR)
    • 0.1.0
    • Public Health
    • Use Cases
    • 3.1 Business Need
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      Leverage existing FHIR infrastructure to transmit cancer case information primarily from ambulatory care practices to state cancer registries. The intent is to automate and provide access to data not currently available to public health and research. Automation of cancer case registry reporting will reduce the burden of manual or other non-standardized data collection processes that currently exist.

      The MedMorph cancer registry reporting use case will not replace hospital cancer registry data collection and reporting methods which are working well. Hospital-based cancer registries use certified tumor registrars (CTRs) to abstract data and maintain information on cancers diagnosed and/or treated in their hospitals. Hospital cancer registries and CTRs follow standardized rules and data collection methods for the purpose of cancer analysis and research. Alternatively, EHR data are primarily used for clinical care and routinely require manipulation and translation to meet the needs of the state cancer registry.

      Additionally, since 1995, hospital cancer registries have been reporting cancer cases to state cancer registries using a national standard format and process. We do not want to replace this existing cancer reporting mechanism which works well.

      The MedMorph central cancer reporting use case is therefore intended to be used primarily by non-hospital providers (e.g., physician offices, oncology clinics, radiation therapy centers, etc.) and by hospitals without cancer registries.

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      Leverage existing FHIR infrastructure to transmit cancer case information primarily from ambulatory care practices to state cancer registries. The intent is to automate and provide access to data not currently available to public health and research. Automation of cancer case registry reporting will reduce the burden of manual or other non-standardized data collection processes that currently exist. The MedMorph cancer registry reporting use case will not replace hospital cancer registry data collection and reporting methods which are working well. Hospital-based cancer registries use certified tumor registrars (CTRs) to abstract data and maintain information on cancers diagnosed and/or treated in their hospitals. Hospital cancer registries and CTRs follow standardized rules and data collection methods for the purpose of cancer analysis and research. Alternatively, EHR data are primarily used for clinical care and routinely require manipulation and translation to meet the needs of the state cancer registry. Additionally, since 1995, hospital cancer registries have been reporting cancer cases to state cancer registries using a national standard format and process. We do not want to replace this existing cancer reporting mechanism which works well. The MedMorph central cancer reporting use case is therefore intended to be used primarily by non-hospital providers (e.g., physician offices, oncology clinics, radiation therapy centers, etc.) and by hospitals without cancer registries.
    • Becky Angeles/Maria Michaels : 19-0-1
    • Correction
    • Compatible, substantive

    Description

      This will not replace hospital registry reporting methods which are working well. Provide a description of the workflow for the hospital registry reporting which is stated is done well to set the context for how FHIR could be used to transmit cancer information for ambulatory care practices.

      (Comment 109 - imported by: Jean Duteau)

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            beckyangeles Rebecca Angeles
            Gonzaga Zabrina Gonzaga
            Zabrina Gonzaga
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              Updated:
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